Disclaimer: This list of web-based materials is intended to be used for educational and informational purposes only. GMDI has not reviewed any of the listed materials for medical accuracy. Any agencies, products or organizations listed below does not imply endorsement by GMDI.
(updated August 2017)
Canadian PKU and Allied Disorders CLIMB – Children Living with Inherited Metabolic Disorders Connecting Families Urea Cycle Disorders Foundation Cook For Love Feeding Tube Awareness Foundation FOD Family Support Group Galactosemia Foundation Genetic Alliance Glut1 Deficiency Foundation HCU Network America March of Dimes Mid-Atlantic Connection for PKU & Allied Disorders, Inc. (MACPAD) Mitochondrial Disease Support Group MSUD Family Support Group National Organization for Rare Disorders (NORD) National PKU Alliance National PKU News National Urea Cycle Disorders Foundation Organic Acidemia Association Propionic Acidemia Foundation Rare Disease Clinical Research Network (RDCRN) The Association for Glycogen Storage Disease (AGSD) The Association for Glycogen Storage Disease - UK The Charlie Foundation for Ketogenic Therapies The National Society for Phenylketonuria The New England Connection for PKU & Allied Disorders (NECPAD)
For more information about GMDI or MetabolicProplease contact us:info@gmdi.org
GMDIP.O. Box 1462Hillsborough, NC 27278