Disclaimer: This list of web-based materials is intended to be used for educational and informational purposes only. GMDI has not reviewed any of the listed materials for medical accuracy. Any agencies, products or organizations listed below does not imply endorsement by GMDI. 

(updated August 2017)

Canadian PKU and Allied Disorders
CLIMB – Children Living with Inherited Metabolic Disorders
Connecting Families Urea Cycle Disorders Foundation
Cook For Love
Feeding Tube Awareness Foundation
FOD Family Support Group
Galactosemia Foundation
Genetic Alliance
HCU Network America
March of Dimes
Mid-Atlantic Connection for PKU & Allied Disorders, Inc. (MACPAD)
Mitochondrial Disease Support Group
MSUD Family Support Group
National Organization for Rare Disorders (NORD)
National PKU Alliance
National PKU News
National Urea Cycle Disorders Foundation
Organic Acidemia Association
Propionic Acidemia Foundation
Rare Disease Clinical Research Network (RDCRN)
The Association for Glycogen Storage Disease (AGSD)
The Association for Glycogen Storage Disease - UK
The Charlie Foundation for Ketogenic Therapies
The National Society for Phenylketonuria
The New England Connection for PKU & Allied Disorders (NECPAD)