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VLCAD Nutritional Guideline (NG) Toolkit

GMDI and SERN are pleased to announce that the very-long-chain acyl-CoA dehydrogenase deficiency (VLCAD) Toolkit is now available online. The VLCAD toolkit consists of 7 case scenarios detailing nutrition intervention for newly diagnosed infants, children, teenagers and pregnant women living with VLCAD. We hope the VLCAD Toolkit case examples, as an adjunct to the VLCAD Nutrition Guidelines, will be helpful to metabolic dietitians providing medical nutrition therapy for individuals living with fatty acid oxidation disorders.


The VLCAD Toolkit is collaborative project that includes case contributions from experienced GMDI dietitians. Financial support was provided by HRSA* and GMDI. 

Contributors include:

Nutrition Guidelines Principal Investigators
Rani Singh, PhD, RD and Fran Rohr, MS, RD
VLCAD Guideline and Toolkit Co-chairs
Mary Sowa, MS, RD and Sandy van Calcar, PhD, RD

VLCAD Toolkit Workgroup Members
Jennifer Beazer, RD, CSP, LD
Melanie Gillingham PhD, RD
Suzanne Hollander, MS, RD
Tyler Setlock, RDN, LN
Tarine U. Weihe, MS, RD, LD

Project Coordinators

Kristen Narlow, MS, RDN, LD, CC and Adrya Stembridge

Rani H Singh PhD, RD, LD
Professor
Emory University
Department of Human Genetics and Pediatrics
404-778-8519
rsingh@emory.edu
 

*This project is supported by the Health Resources and Services (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $600,000 with .025 percent financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov

More information about the Nutritional Guidline Project

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please contact us:
info@gmdi.org

 

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P.O. Box 1462
Hillsborough, NC 27278

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