HCU Network America has developed a list of talking points for those in the metabolic field to reach out to their newborn screening labs and speak to them on the behalf of homocystinuria patients. Click HERE to view the talking points.
Day of Action for
National Medical Nutrition
The Patients & Providers for Medical Nutrition Equity (PPMNE) Coalition is hosting this day of action because it is critical that we remind Congress that access to medically necessary nutrition is essential, particularly given the economic uncertainty brought by the pandemic. YOU CAN HELP
Go to https://nutritionequity.org/dayofaction/ NOW to see how to:
- Send an e-letter to your US Senator and Representative to ask them to co-sponsor.
- Submit a personalized medical food story- Provider stories welcomed!
- Ways to engage patients and families in the process as well.
GMDI is a PPMNE member and we strongly encourage you to complete as many of the activities as you can so that Congress gets hears us loud and clear - #MedicalNutritionEquityNOW