Non-Profit/Parent Organizations

Disclaimer: This list of web-based materials is intended to be used for educational and informational purposes only. GMDI has not reviewed any of the listed materials for medical accuracy. Any agencies, products or organizations listed below does not imply endorsement by GMDI. 

(updated 12/7/2014)

Canadian PKU and Allied Disorders
www.canpku.org

CLIMB – Children Living with Inherited Metabolic Disorders
www.climb.org.uk

Cook For Love
www.cookforlove.org

FOD Family Support Group
www.fodsupport.org

Galactosemia Foundation
www.galactosemia.org

Genetic Alliance
www.geneticalliance.org

HCU Network America
hcunetworkamerica.org/

March of Dimes
www.marchofdimes.com

Mid-Atlantic Connection for PKU & Allied Disorders, Inc. (MACPAD)
www.macpad.org

Mitochondrial Disease Support Group
mitosupport.org

MSUD Family Support Group
www.msud-support.org

National Organization for Rare Disorders (NORD)
www.rarediseases.org

National PKU Alliance
www.npkua.org

National PKU News
www.pkunews.org

National Urea Cycle Disorders Foundation
www.nucdf.org

Organic Acidemia Association
www.oaanews.org

Propionic Acidemia Foundation
www.pafoundation.com

The Association for Glycogen Storage Disease (AGSD)
www.agsdus.org

The Charlie Foundation to help cure Pediatric Epilepsy
www.charliefoundationforum.org/forum

The National Society for Phenylketonuria
www.nspku.org

The New England Connection for PKU & Allied Disorders (NECPAD)
www.necpad.org

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