Non-Profit/Parent Organizations

Disclaimer: This list of web-based materials is intended to be used for educational and informational purposes only. GMDI has not reviewed any of the listed materials for medical accuracy. Any agencies, products or organizations listed below does not imply endorsement by GMDI. 

(updated 12/7/2014)

Canadian PKU and Allied Disorders

CLIMB – Children Living with Inherited Metabolic Disorders

Cook For Love

FOD Family Support Group

Galactosemia Foundation

Genetic Alliance

HCU Network America

March of Dimes

Mid-Atlantic Connection for PKU & Allied Disorders, Inc. (MACPAD)

Mitochondrial Disease Support Group

MSUD Family Support Group

National Organization for Rare Disorders (NORD)

National PKU Alliance

National PKU News

National Urea Cycle Disorders Foundation

Organic Acidemia Association

Propionic Acidemia Foundation

The Association for Glycogen Storage Disease (AGSD)

The Charlie Foundation to help cure Pediatric Epilepsy

The National Society for Phenylketonuria

The New England Connection for PKU & Allied Disorders (NECPAD)

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